Tuesday, November 15, 2011

My First Meeting and a Bit About Coraggio!

This past weekend I had the opportunity to attend my first Myasthenia Gravis chapter meeting.  The NJ chapter holds about four to six meetings a year.  They meet about an hour from my house, and since I can't drive as far as I used to without my arms and neck tiring, my sister acted as driver.  We made a few references to "Driving Miss Daisy" and off we went!

I was very excited to finally meet other people who live with MG. MGer's  as my friend Kerri calls us.  I still don't know what most people prefer, I guess I'll learn as I go to more meetings!  The people were warm, friendly, and gracious.  Many shared their stories, they talked of daily struggles and ways to overcome obstacles they faced.  The chapter has a lending library, you take a book home and mail it back to the librarian when you're finished.  

A guest speaker was also on the agenda.  Her name was Lisa K. Gigliotti, J.D., an administrative law judge, a policy adviser for the Michigan State Senate and Governor, as well as an advocate for people with disabilities.  Ms. Gigliotti is also an author and motivational speaker. She too lives with Myasthenia Gravis and Rheumatoid Arthritis.

Her presentation was called "Coraggio, Lessons for Living From an Italian Grandmother". Lisa talks about how she overcame the disabling effects of Rheumatoid Arthritis and later Myasthenia Gravis. She shares stories about her family, and how she drew strength and coraggio (courage) from her grandmother after the death of her mother and aunt.  
I hope you get the chance to hear Lisa or read one of her books.

To visit Lisa's blog, or watch her video visit:

Lisa, Thank you for showing us how to live with "CORAGGIO!"

Friday, November 11, 2011

The Yes We Can Van

I had the pleasure of meeting one of my newer Facebook friends yesterday.  Her name is Carole Brown, she's originally from the UK, buts now calls the USA home.

Carole is currently traveling across the United States in her "Yes We Can Van". It's a vintage 1970's VW camper van.  

The main purpose to raise awareness  about Myasthenia Gravis (MG). MG is a rare under diagnosed auto-immune neuro-muscular disease that causes severe muscle weakness, currently there is no cure.  Anyone can be affected by MG, it knows no age, race, or ethnicity. 

Carole's mom lived with MG, it has become her life's mission to tell others what MG is and how it affects people's lives. She is currently traveling along the southern states en route to California.  She plans to visit MG chapter meetings and visit with others whose lives have been affected by MG. 

If you would like to follow Carole and her "Yes We Can" camper van or learn more about Myasthenia Gravis simply 
 click on this link.
  Wishing you safe travels my friend!